No one deserves the hell of withdrawals

Please click on links!  No photos here, just a Youtube video to watch, then read the post.

Heartbroken and alone in the Hell of BWS

No one deserves this.  This is the face of a person suffering from an iatrogenic illness.  This is a common occurrence with thousands of people worldwide suffering the acute and protracted withdrawals from  psychiatric and pain medications taken as prescribed by their  physicians and other medical care providers.

Most often when a doctor or emergency room is presented with someone in the throes of this kind of an illness they will prescribe more psychiatric medications that will often exacerbate the symptoms more.  Unfortunately prescribing for these kind of symptom presentations is all they have been trained to do.  Additionally the insurance companies promote medications to get you home and back to work.  Despite the sometimes life altering side-effects.

The reality is many who are managed this way by their PCP won’t get back to work or, if they do, they  continue to suffer with numerous life altering side effects of the medications such as lethargy, insomnia, muscle pain, brain spasms, neurological challenges, brain fog,  suicidal ideation (that is what that little black box is about folks) and more.

As hard as it is for me to see myself suffering this way everything I discussed was true and I am so glad I recorded it!  I was not able to manage my emotions, I wasn’t able to control my symptoms, I really struggled to manage life at this time, but every thing I spoke of was spoken in truth and that hasn’t changed today.

While many suffer horrifying challenges, please don’t discard what they tell you.  They aren’t lying. They aren’t being dramatic. They are ill and suffering untold traumas that you can’t possibly imagine unless you have endured them yourself.

Please watch my most recent video to see the difference!  I also intend to post a new Youtube video this week, so check back!  Healing takes a long time for many and it’s often very difficult and seems like the person is having worsening psychiatric symptoms.

Yet the fact is the withdrawals off those medications were causing the truly SEVERE emotional dis-regulation.  While not completely healed yet I am able and do have many interactions that don’t end up with me having a melt down today.  I’m not in a major depressive state.  I haven’t had a full on panic attack or even major anxiety other than in heavy traffic in the year+ since I’ve been off all pharmaceuticals.  The reasons everyone said “you will need to take some type of anti-depressant and medications to help you manage the rest of your life” are pretty much gone.

If you love someone who has been injured by medical intervention, please show compassion and patience.  We don’t ask for this.  We are only doing what the medical professionals told us would help.  Please trust us when we say these medications make us worse, not better.  Despite the symptoms you see.  I know it’s difficult to watch.  I do it daily now myself with many friends who contact me who are suffering.  I know it’s scary and feels out of control.  It is.  I know you think people need “medicine” to help.  That doesn’t always work.

Please do your research and be educated if you are prescribed anti-depressants, anxiolytics (benzodiazepines), pain medications longer than 2 weeks, and many other types of medications.  If there is a group to be found in a Google search that says they were harmed by a medication you have been prescribed, pay attention to that! Don’t chock them up to someone “crazy”.

I myself, watching this video, would have shied away in judgement just a few short years ago.  I would have judged and labeled and discarded as not worthwhile or truthful simply because of the intense emotional disregulation.  Please take the time to see where I am now and many others like me.  We do heal. It’s slower than molasses on a frigid cold day, but it does happen.  I believed it would somewhere inside me, because otherwise I would have never shared this hell with the world in the beginning!

 

 

 

Advertisements

18 months since I jumped: An update on healing

IMG_20180209_151619_446

I am able to recognize my blessings each day and be grateful for all I have and have hope for continued blessings in my future!

Greetings from a highly improved me!   It has been eighteen months since I jumped (abruptly discontinued) from taking Ativan 1mg daily after tapering from taking Ativan 3mg daily. I tapered over the duration of two years. My severe detox and withdrawals period was exacerbated by the fact that I had jumped off Oxycodone 10mg only two months prior to stopping the Ativan.  I had tapered off a daily dose of 45mg-90mg over a 2 year period.   What had started in 2010 as a prescription for Percocet 5/325 one every 6 hours as needed for pain, grew until it became a monster in my life that ate all the goodness up. It was just one of the numerous medications that I was prescribed over two and a half decades.

From my records dating 2010 until the fall of 2017 I had 19 pharmaceuticals prescribed to take on a daily basis. Many of them for longer than the recommendations written in those little tiny informational packets you get sometimes with a bottle of pills. Many of them were also prescribed for things other than what they were originally created to treat. Off label uses.  My PCP (Primary Care Providor) also had recommended numerous over the counter medications and supplements as well.

 

                                                                I can smile so much easier these days 
I had been quite aware of the perils of addiction as I have personally witnessed and experienced it in my life in many forms and throughout many experiences.  My own addiction (maladaptive coping mechanism for suffering) was gambling. I knew what it felt like to not only crave something, but would go to great lengths to have that need fulfilled.

That is NOT how the medications were for me. I was dependent upon them. I took them as prescribed. I was trying to check IN to life. I was trying to find a way around the pain (both physical and emotional) so that I could participate in life. Yet the conditions continued to mount until the amount of medications my PCP prescribed became toxic! They didn’t work anymore.  In fact, some of them created a paradoxical effect, causing the exact symptom they were meant to treat.

When I recognized that the use of all these chemicals was harming me more than they were helping, I knew it was time to make radical changes in how I was managing (or letting my PCP manage) my health. I took back the reigns and sought a different path
It wasn’t really a conscious choice, embarking on the journey through the hell I have been through.  It was simply the act of starting a forward movement towards change by doing just one thing differently. Then it grew to more things differently. Things like spending a lot more time outdoors. Activities such as interacting with animals and being creative with a camera. Making very conscious choices in what I put into my body. Eliminating as much negativity as I could. Yet, there were still struggles as I didn’t know all that I would face along this journey.

No one had warned me that there was a possibility that I could have psychotic episodes coming off these medications. No one had warned me that I could reach tolerance and have paradoxical effects like a severe case of insomnia that lasted for 20 years. Only now, after being off every single medication for 40 days, am I beginning to have occasional bouts of normal sleep. No one told me about excruciating bone pain that left me curled up and rocking and crying on my mattress. No one told me of the incessant need to move, the rocking and bouncing legs and full body restlessness that was exhausting and robbed me of any rest for my ravaged body and brain. No one prepared me for how shunned I would feel and how that would further the crippling agoraphobia and paranoia so that I could not tell who I could or could not trust. This further complicated the entire process.
No one else knew how bad this would be either. I know now that there was NO one in my life anywhere close to prepared for the wild and horrifying symptoms and behaviors this would create.  It was terrifying to go through and I can imagine it was scary as hell to watch! In fact, knowing many others who have endured the hell I have, some even worse, I know that very few people in the world have been prepared to be of any assistance for someone going through this type of severe and lengthy mental and physical anguish.
That first year was a doozy! Fraught with the loss of health and home and any stability I believed I had, pretty much everything was gone in my life! Friends, family, belongings, any sense of dignity was gone.  I was robbed of all hope by the Benzodiazepine demons that lived in my head. All I did was bounce where the winds took me, trying to protect myself from me, and from others who were ill-equipped to be of any help.

Unfortunately, sometimes due to their lack of understanding or skill, those I most hoped would help were only able to add to the pain and suffering by their responses and reactions to me.   Those that truly care would have done different if they had known how.  I believe this is true for all of us suffering from this.  Yet they are the ones who just mostly stood by and watched and felt helpless. They had nothing to offer except recognizing the pain was there.  Today I can feel bad for their experience in watching all of this hell.

Untitled

This last 6 months I have turned a corner. I can feel it internally and others have commented on it externally. I have been more focused on myself and finding healing and seeking the path to wellness than ever before in my entire life.  The tools and skills and interactions and experiences I have participated in have helped me have a sense of acceptance and peace.  I truly feel more equipped to deal with whatever life may bring to me from here on forward.   More than ever before in my life I have a sense of direction and purpose.
I still have much work to do. Both of my current therapists are recommending intensive treatment for Complex PTSD (Post-Traumatic Stress Disorder) including modalities such as ACT (Acceptance and Commitment therapy), CBT (cognitive behavior therapy), and EMDR (Eye movement desensitization and reprocessing). Both of them say it is imperative for me to do this work for complete healing and the ability to get past the things that haunt me regardless how much I try to not let them.
I personally have taken it upon myself to learn life skills that I have found are helping me tremendously. I have adopted the practice of meditation. I meditate at least once daily, but usually twice a day. MY meditation is very much connected to my spiritual practice and prayer time. I also do Conscious breathing, utilizing a timer to just stop and breath once an hour. These skills have reduced my anxiety tremendously and are excellent for staying in the moment which is so necessary for those with PTSD.  I eat at least an 80/20 whole foods diet, primarily organic in nature and from sources as local as possible.

Since the New Year I also have been working on having the habits of movement (exercise) and drinking more water daily. I have also begun light jogging. This I am doing still with living under the fact of pain is in my life. I have nerve pain in my feet that is non-stop 24/7. I also have pretty severe back and neck pain. Yet after a 10 week-long session at a pain clinic, I have learned some wonderful new ways of looking at pain and living with it. This is why I now am more encouraged and hopeful than I have been in an extremely long time. I feel very empowered.

This slideshow requires JavaScript.

Yet I still need help. I am still homeless. I still have no vehicle.  I am still awaiting a determination on my most recent filing for Social Security Disability. I still have a couple of years ahead of me doing some really difficult personal therapies. I still have limited energy and endurance.
After careful consideration, counseling with others, and making efforts to find stability and a place to live and work both where I am and where I last came from, I have decided to go back to S. Oregon.  I have more work I can do there than I have been able to find here.  I ran an ad and I have already booked 3 house-sitting gigs. I also have a couple of clients that want me to do periodic light work around their properties (gardening and housekeeping type chores). I have a friend who has offered me the use of her trailer for 11 months, and I have a couple of possibility of places to put it in exchange for helping on a person’s property either with care taking or with farm type chores.  I am willing and able to do this. It won’t be enough to get ahead, but I will have a roof over my head and some security for at least that time period.

26814693_10155421707537987_2356268122553844933_n

I have been offered a trailer like this to use for about 11 months if I can get a secure place to park it! High living for a modest gal like me!

What I need more than anything right now is a vehicle and maybe the first 6 months of insurance paid.  Or even the first 3 months. Then I can get to the house sitting jobs and the clients who have other chores to do. Then I can earn a few pesos each month. My goal is $600, which is 30 hours a month. I will most likely have to do that many hours again where ever I end up parking the trailer in exchange for rent.  That works out to about fifteen hours weekly of being up and moving and doing some sort of physical activity.  15 hours a week is about all I can do without being where I can lie down and rest intermittently.
I know I will keep improving as I continue to do the habits I’ve created and use the tools I have obtained. I know my energy will increase as I continue to lower the stress of dealing with PTSD through the time invested in treatment and as my body continues to heal from the damages done by the medications I took for too long!


I also am involved with Vocational Rehabilitation.   They are going to help me pursue the reinstatement of my nursing license. It is my short-term goal to utilize my nursing license in creating a health and wellness mentor and coaching business. I believe I have a vast amount of knowledge and experience that can be used to help many others who live with physical and emotional pain. I believe my new-found enthusiasm and gratitude for a new opportunity can encourage and inspire others to pursue their truest selves! I have been a helper and have had a healing nature throughout my life. Now that my true self (not drugged by pharmaceuticals) is re-emerging stronger than ever, I trust that God and the Universe will allow my best self to help others possibly find their way out of suffering too!

20180205_231710

Participating in an online Health and Wellness coaching program. It is self directed and self paced. Perfect for me right now. As well as it is FREE!!!

I am so grateful I am still here on earth and alive. I am so grateful the benzodiazepine (and other pharmaceutical) demons did not completely destroy me. It felt like I was destroyed at times, yet here I am smiling and grateful and caring for myself….and others!

After such a dark and seemingly endless foray into the depths of psychological pain so deep I felt life wasn’t worth living, I now have hope!!!  I also am able to develop goals.  It is the first time in many years I have felt capable of even thinking of having a goal, let alone taking the necessary steps to get there.  One of my goals is to  jog/run in a 5K event the weekend of my 56th birthday.   My new walking habit inspired that goal.  I have never enjoyed running or jogging, even as a child.  Yet now, when pushing through the chronic pain, I find that I reach a point of some real clean current pain and it is a desirable experience.  Pushing past the pain to get going is worth it.  The daily steps I am taking are to keep me focused and to build my skill and strength level to reach that place of being able to complete the race.  After the race,  if I still feel it is something that is adding value to my health and life and wellness, I may try for a 10K.  It is a measurable success.  There are other goals as well so each day I purposefully do actions to bring me closer to the prize…..WELLNESS and HEALING!

I also have a great aspiration to help others like me!!! I have a big dream of someday creating a healing place (long term inpatient facility) for those like me who have suffered in their lives with DIS-ease of any kind.   People wanting to come off pharmaceuticals that have become toxic to them, especially opiates and benzodiazepines; those who suffer the consequences of addiction; those who have emotional pain that requires that they be loved on and guided and encouraged to health! I envision a place of many woods and streams and much beauty where people can rest their tired minds and bodies and take a few deep breaths for a period of time. I see gardens and animals, some of them providing companionship, others there for their food source to provide healthy nutritious meals. It will be a place where there is patience and tolerance and gentle trauma-informed guidance. People will have a time and place to explore their suffering and learn skills for finding peace and acceptance of what is.  I dream of it being a place they will also find a sense of purpose and the ability to create goals and plans for achieving them. It is a big dream. It will require a big tribe to create it. That will be a huge focus on the next portion of my journey. Creating a healing caring loving tribe that can share this vision! 🙂
oh….btw….it feels great to be able to write a bit! That is one skill that has suffered during this time and it is another sign of my healing!

What could I have done different?

20160723_152431_HDR

I wonder if there were things I could have done different, or if everything else that has happened would have happened regardless of what I have done. Things like reminding my loved ones that I have been slowly detoxing off meds for 2 years, and to please have a little more patience and understanding with me if I am more anxious. Would it have made a difference? Would they view the events as they unfolded a little differently? Or would the ugliness of my outbursts be just as scary?

I can’t undo anything that was done, so what do I do to atone for my actions? From hundreds if not thousands of miles away from one another? Especially now when many are either frightened or angry or disappointed or disgusted in me, or all of them?

A perfect storm happened and I got caught in the middle and I lost it and now I’m the bad guy. That is what it feels like. Among other things.

Of course….my feelings are all on edge. No sleep again for a few days, heart hurting, feeling alone because I pushed everyone away and now they are staying away. It is so hard to hold on to hope.

Because of me trying to get better, by getting off the damned pills, I may well have lost some of the things I thought I wanted most in my life. I mean how do you atone for throwing hatred around? How to you atone for name calling and threats and all the things I did? How will I ever be able to forgive myself??? I don’t know. I have so many questions and no answers and no one is talking and so it’s just the old tapes running and running and running.

“It’s all you fault”. I heard that so many times in some of the worst situations when I was a kid. Or, “quit wearing your heart on your sleeve, quit your ballayhooing”. Or, if you would have tried harder you could have got the award “(of course no one told me about the rewards offered until after the fact). How about “keep crying and I’ll give you something to cry about”.

So now that I’ve misbehaved, acted out in fear and anxiety with a fight/flight response brought on by multiple stressors as well as going through detox, all those old tapes play because I have nothing new to replace them with. What has happened my whole life is how it is today. I am alone. I wonder if it would be different if there ever was a time when things were so hard that if someone would have held my hand and said I will love you through this because you are worth it, maybe some things would have been different. Oh how I wish so much was different.  I am really struggling with so many emotions.

So what am I doing in the meantime to fill the time?  Today I found a tire for the lawnmower for FREE!!!!  Now that is something to be grateful for because online they were about $25.00 and a wait of a week or so.  The weeds were driving me nuts.  So, I went and picked up the tire, changed out the bearing (it was the wrong size but I fixed it), and mowed the lawn.  Of course I also tended to all the flowers, doing my daily dead-heading.  I paid attention to the new blossoms and what is doing well and what is struggling.  Some of the strugglers…I just keep watering and fertilizing and hope they survive.  It’s all I can do, right?

I also spent some time making myself look pretty, just because.  I am typically not a makeup foo foo type of gal, but I CAN do it!

20160722_230944

I”m going to live through this, I know that.  But what is the cost going to be?  What will the tally be a year from now?  How about a week from now?  How long will it take for others?    Dear God I wish I had some answers or some better understanding.  I’m really doing my best.  But you know that…even if no one else does.

Save

Day 6 and the worst is over I hope!

Today, I spent some time trying to piece together the last 60 days. It’s hard. There are lots of big spaces of time I don’t remember much. That scares me. It’s evident whatever happened freaked out my loved ones in a big way. I was on the phone saying so many things that were not at all what I was wanting to say but my brain just was somewhat frying. It just was what it was.

Which of course adds to my shame and guilt.  I have not had that occur since I quit gambling. Yes, I’ve lost control of my emotions before, but I have had no “out of body” experiences like I experienced this time. I sure am glad I write tho, because I can go back and somewhat piece together the build-up, the blow, the loss of time, and then I went straight into detox for the Xanax withdrawal. Not the smartest idea in the book. But hey….who said I was thinking in any congruent way during this time?

Although extraordinarily fatigued with pain increased,  I think I’m doing pretty well. I am stronger than I remember sometimes. While I was feeling so weak, I had some idea of what I wanted. I have been on a journey to get off these pills for nearly 2 years. I wanted to get my overall health and strength a little better because I knew I was getting to a place I was ready to deal with some more of my “stuff”.

I did know I was having some PTSD triggers There were some encounters with people I cared about where I felt under attack so decided to disengage from those relationships. That is not something I do lightly. Yet, in retrospect it showed I was getting stronger because I was able to say to myself, “this is not healthy for me”.

In late February or early March was one  occasions and I handled myself with composure (maybe showing a slight displeasure but that is all) and then returned the next day to discuss the situation and stated what behaviors I could handle. That is a HUGE thing for me.

As time passed and other situations occurred I knew I needed to do some digging to see why I so easily get triggered by certain personalities. To be frank, I believe it’s because of my mother and our relationship and her behaviors. There are certain behaviors in women I just cannot tolerate at all. It gets my ruff up so bad and I have to just clench my teeth. Pointing, especially if someone pokes my chest, intimidation posturing, badgering, and overly aggressive. I have a tolerance and then it just is gone. It was like I was doing okay, handling each situation the best I could while trying to be professional in my role as “property manager”, and then it was over the edge.

I had told a few folks about my encounters and how they were affecting me. I had thought I had stated I was getting very stressed and overwhelmed, but again, I believe others hear it as “whining”. It was in late March that I picked up paperwork to get back into counseling. I didn’t get it turned in until mid-April after recovering from the flu. I didn’t get back in until  about the end of June for intake. Back in late March I knew I was over-stressed and had taken on more than I could handle.

In my perception a great deal of the stress came because what I perceived as agreed conversations on what was going on with the property and tenants wasn’t happening. I also had a situation with a friend and it was just the last straw.  I was so overwhelmed trying to get this property ready for renters. I had to help pack up a house that was full of many collections. Tapes(VCR and Cassette), books and mountains of electronics. The entire second story was just storage! I also had to get ready for an Estate Sale. I had never done one before and what a TON of work that is. I also had to help Mr. Chicago’s brother find an apartment and then I had to help him figure out how to make a home for himself in his new place. January was exhausting.

Then in February I was still doing okay after taking a little break, but that is when some of the encounters with PTSD triggers really started. After the first one I was shook up and tearful for a couple days. Then I tried to rectify things in an adult manner and carried on. Then there was another encounter in March. Again, I held my tongue, waited a day or two and then tried to rectify it. I also was telling my family and loved ones about the stress this was bringing me. Yet, no one is around me to actually see what those affects looked like. Often when you have PTSD triggers in my mind I feel like I sound like I am “complaining”. But what I’m trying to convey is I am getting over-stressed and I can’t make prudent choices and I need some help.

I had my trip to Chicago in late March and then came home and landed in the hospital for 4 days with the flu and pneumonia and when I came home and got well enough I had to stretch myself again. I was interviewing potential land renters. I had to run ads and make phone calls and then talk with these people at length regarding their needs and what we could provide for them. I am not a good salesperson. It makes me very uncomfortable, so I was stressing about that. More stress. I am feeling like I am falling behind here. There is so much work to be done and I am coming home after a nearly 2 week absence and it’s time to start the gardens and I still have things to haul to the dump and things to sale and continued encounters that were less than comfortable with some people.

Then came May. I did forget to mention that I had a very serious family issue that occurred in January that was an ongoing concern and stressor until early June. Those of you who follow my FB page remember, Mr. Chicago came out for my birthday in May. It was truly the BEST surprise I’ve ever had for my birthday. The BEST.   During the time he was here I was able to show him a little of what the issues were but by that point I was definitely at a point that any more encounters with triggers was going to set me off. But to him I’m sure they seemed small, each little instance.

That is not so for someone with PTSD. I’ve only had one occasion where it was a single incident that triggered me. Even at that time, I had been under a LOT of stress. Typically when I go into a meltdown mode (post gambling…completely different scenario) I have had a number of stressors on top of a number of triggers. I can only take so much. Which, is another reason I have been trying to get disability.

Having a disability like this doesn’t mean I can’t function or that I’m not smart or capable. It means I can’t take the daily struggles like a person who doesn’t have a  disability. Over the years I’ve tried to explain so much.  I can do a little physical and deal with the pain, but then my stress will get up and so I can’t deal with people or additional stress. Or, I can be medicated and take it gentle on my body and not do a bunch of hard things and my brain works. In fighting chronic pain as well as mental health issues life gets very overwhelming at times.

After Mr. Chicago went home, I thought we kind of had things under control. But that was not the case at all. There were still unresolved issues that came up and a number of incidents that made me uneasy around the 12th of June and that was when I started going over the edge.

After my first blow up, I had a few days where I just was telling everyone “I’m done”.   I am not able to make these decisions. I was trying so hard to take care of the area here and do a good job. I went up and down and up and down for a couple weeks and then settled down a bit. But by then, I was really struggling inside with a lot of things.

I didn’t feel safe anymore. Because I had “acted out” I was scared and embarrassed and pushed everyone away more. I didn’t want anyone to see me unhinged. The lonelier I got and the more I tried to figure out what I could have done different I just got more and more distressed.

I tried to “pull it together”, but I had forgotten that back in May I had purposefully come to the point that I wasn’t gong to refill the Oxycodone anymore.  That had been my goal and I reached it and was doing okay. I didn’t take into account how that my affect my mental health when I was already under stress. I continued to rage and then cry and then rage and then cry. I’ve said “I’m sorry” so many times in the last 2 months and then gone and done the same exact thing.

That is what happens when you have a PTSD breakdown. You feel okay for a few minutes and think you are okay to be around others and then Every Little Thing bugs the hell out of you. Drivers that are speeding and reckless caused me to be the same…trying to chase them down to tell them what crazy drivers they are. Ha ha ha….and who was the undone woman chasing them? Yes…that was me! Hence the limited driving these days.

So June ended and July rode in and yet another big stressor met me on the 5th. Something that made me think of bad things from long ago. I tried to explain to the other my feelings but was met with resistance. This made me feel even more unworthy and increased my angst.

So on 7/12 I had ran out of Xanax and decided not to go to town to pick up my prescription the next day. I had made a choice. Not wise, with my thinking at the time, but it was just me here and I was going for it. The first night I found out some information that truly just made my head burst. My head has been racing and my heart has been racing and I became obsessed with this information and it was rough that first day or two. I was not only going through Detox and PAWS, but I was in the midst of a mental health breakdown and kept getting news that left me feeling so alone and so WRONG for everything. Lots of thoughts of “why am I here?”.

That’s the mindset of a PTSD person. When I am in a PTSD head, I am in total fight/flight mode. I feel horrible. I think I am the worst person in the world. I want no one to see me. I don’t behave in ways that are typical for me. I get quite mean (to push people away) I’ve been told. I typically am NOT mean! I am a lover and a giver and a smiler. But under duress from a PTSD flare I can dish out some verbal bashing and be quite harsh.

I hate that. Which is a big reason for going back to counseling. I know I still have learning to do. I am hoping by completing my detoxification off the narcotics and benzodiazapines my head will be clearer for doing the work I have in front of me.

I know nothing about my future right now. Neither do you…if truth be told. I remember my counselor telling me that I learned early in life, it can all change overnight. In the meantime I am hunkering down and just trying to take care of myself. I deserve it. So do those who love me. I despise scaring them so. Evidently, as I was recently reminded, it’s been going on for some time.   When I get to my lowest I have very pronounced suicidal ideation. I forget about it for the most part when I’m well. I know how that feels as my mother suffered with the same. It is very hard for those around a person feeling like this.

Today has been the clearest my mind has been in a very long time. A very very long time. Even with the fatigue of not sleeping the last two nights (going on being awake for about 58 hours now) my brain is clear. I truly am grateful for being able to finally get off all that.

The cannabis is working. The dosing is not exact, yet. Just like me. I’m working on it. Thanks God for a gentler alternative that comes form the earth!

20160717_195729_HDR[1]

Save

Another Day

20160629_162622_HDR

The view out back.

I believe the last day I had any opiates was May 10. That means today is day 51. Whew! What a roller-coaster it has been. Physical pain some days, other days tons of energy and low pain, emotional highs and lows, anhedonia, obsessive compulsive behaviors, restless legs, sweating, raging, sleeplessness, tearful, irrational, sensory overload, lonely (this is my own choice to be alone, yet it still is a lonely place).  Yet, here I am, upright, breathing and doing my best!

20160629_164235_HDR~2

Hidey Hazel kitty

Yesterday was a pretty decent day overall.  I started the day opening the blinds in my bathroom.  My veggie garden is my view out the back of my fifth wheel.  Its coming along nicely for what I’ve had to work with.   The best thing was my kitty that had fled the coop a week or so ago is living under the porch now and I got to see her.  I took her food and water.  I also filled the hummingbird feeder, watered the garden, took some photos, got a shower and went out for pizza with my son after we had a little talk.

I finally asked him about last Friday night. That was a really bad night. In attempting to be social and be out, I over-imbibed in alcohol and it was not a good thing. Alcohol while detoxing off narcotics is a potentially lethal mix.  In more calm and rational times having a glass of wine or two is not a big deal for me. What I learned over the last 2 weeks or so is that if you are removing something that has been part of your pain regimen, it is really easy to substitute alcohol. So a glass or two becomes 3 or 4 and then more. I would not make a good alcoholic.  I found that out in just a short couple weeks of doing some “substituting”. I was somewhat aware I was doing that, but I thought I could control it.  I let it get out of hand.  Right now I have to be very very careful of any thing that might be a potential replacement, other than the medical marijuana.

Even tho I’ve been on a taper for over 18 months, my brain knows that those pills are now gone. Those receptors are screaming for something to fill them up so they can relax. That is what causes me so many symptoms. What I am needing is some better guidance on strains of medical marjuana (MMJ) to use.

20160629_164102_HDR

My best forever friend

Since I started using MMJ, I’ve only had strains I received as compensation for work and what I received from the person who grew for me last year. I’ve been give a few names and very basic descriptions of what the strain is good for. What I need is some direction and expert knowledge of what strains will help with the anxiety and some of the other symptoms that I have been recently struggling with. I have decided I need to take a trip to one of the local dispensaries. Most the strains I have are good for getting me up and moving. Right now, I need something a little more calming. I’ve visited a couple with a friend once but have not had the resources to spend on what I considered as “extras”, when I have plenty here. What I have come to realize is that I need some specific components and for my health it isn’t an “extra”. This is my medicine now.

I am coming to truly understand that this is a science. I have much to learn. I know from the great success I’ve already had the last 18 months that it can be done. I want this to work and it is working. Had I been more mindful I may have waited to stop that last pill until I didn’t have so much stress going on around me. Yet, I could have made an excuse to keep that pill for quite some time. It was my medicine. Now it isn’t.

20160630_171310[1]

Each day the smile is a bit more

I’m not good at “fake it til you make it”. My brain doesn’t grasp that. What I do have success with is keeping on keeping on. It might not look pretty all the time, but I’m not giving up, even when my head sometimes tells me that sounds like a pretty good idea for everyone’s sake. I have been through so much and I know that there is good on the other side of dark times like this.

My hope for my loved ones is they too remember that no matter what happens, my track record has been good for waking up and making it through the days. And for all of you reading, I wish you the best day possible. If it’s not so great hang on, because tomorrow can be, if you just get through what ever it is you have to get through.  Peace.

20160614_165132

Storms often bring heavy growth afterwards

The Clash of PTSD triggers and Opiate withdrawal….and the CRASH!!!

20160620_174456_HDR~3

As I look back over the years, so many hopes and dreams, always feeling like I was working hard, trying my best. Right now, it’s actually pretty amazing what I’ve done with the deal I got dealt. My life has handed me circumstances that not everyone goes through. The multiplicity of the stress of various circumstances have created changes in my brain. I do not see things the way you do. Add to that, the medical arena not knowing how to deal with my various symptoms and handing out prescriptions of mood stabilizers, SSRI’s, pain medications, sleep medications, Neurontin for foot pain, anti-inflammatories, anti-diarrheals, anti-constipation, anti-anxiety medications….among the top 10! It’s truly amazing that I am sitting here able to even be partially present in my day.

I have learned over the years what some of my triggers are. Certain smells like old medicine bottles, slamming of a cupboard door, yelling of any type. I can not tolerate perfumes. I notice them right away. The same can be said to the feel of clothing against my skin. It has to be soft cotton and loose and not too hot and able to be layered because I can’t regulate my temperature when my adrenal glands are on overdrive.

20160626_205304

So I’ve been trucking along working my recovery from gambling, slowly tapering off all those medications and got down to where I was hardly taking any oxycodone anymore. For instance, I might even have a day or two that I took none.Unfortunately, in late March on my trip to Chicago,  I got really sick with pneumonia and bronchitis, the flu and pleurisy. I was miserable. So, since I had them, of course I took the pain meds. I was in pain. Right?

Then, just a couple weeks after healing up from that and back down to just one dose a day or less, I have this incredible ride on a 1939 Ford F9 tractor down a hill with no brakes and out of gear which caused me to dislocate a rib, and so I had to take them again. I actually had a rib poking out (still under the skin), and shoved it back in. I awoke the next morning to the bruise from doing it. That was late April.

20160618_223451

In the interim period of time that I am kind of subconsciously getting myself off the meds (this has been a slow steady progression since 11/14) while huge amounts of stress  get added. Big stuff in January, then some big triggers in February. Based on my journaling and emails from February through March, I was trying to share that I was not feeling safe, or in a place of peace. Then after I got well from all my ailments, there were more triggers. I tried telling people. I wrote letters and tried to have conversations about how it felt to be triggered and how someone could help me. But if someone has not had to really feel what having a PTSD flare-up feels like, they can’t understand my language. In my mind, I think it must sound like “WAW WAH WAW WAH WAW: and they think I am just being a complainer.

So here is where I am going to say I gave everyone the best I could and I am really proud I hung on as long as I did without exploding in someone’s face. Well….that is, until I did. But I held on for a couple months under what felt like incredible stress with no one speaking the same language as me. I’m sure over the last couple of weeks not much of my language has made sense. I know my brain feels pretty fried.

20160624_160653_HDR~2

You see, without really thinking about it, I stopped taking the pain pills. I was feeling better. I was using medical marijuana with good success. I had stopped the muscle relaxers and the anti-anxiety medications quite some time ago….except for that night time dose of Xanax which is what the NP prescribes for my severe insomnia. Oregon Health Plan won’t pay for anything less addictive for chronic insomnia, so this was my option for a long time. I still have to wean myself off of it.

Unbeknownst to me, combining ongoing PTSD triggers and withdrawal from opioid’s is a horrible situation. Had I thought about it, I would not have done it, but now I’m 6 weeks or more into it and don’t want to have to go through all this again.

So….things you need to know if you have PTSD and you also are considering detoxing off opiates with medical marijuana!

  • Make sure you are in a really peaceful and caring place. For at least 6 months or up to year. No high stress. No high drama.
  • Do a slow taper.
  • I recommend RSO if you have been on high doses of opiates. A Sativa with high CBD for nighttime for certain. Stay low….stay easy. Ahhhhhh.(this is one place I went wrong. I didn’t have the right strains to help with the additional stress on my body).
  • Make sure you have some creature comforts, like air conditioning, a tub to soak in, someone to maybe lightly rub your back or feet while you breath through the rough moments.
  • Do NOT operate machinery. Especially when titrating medications. It’s not just a balance and clarity issue. The anger that can accompany opiate withdrawal makes driving a serious hazard. I learned the hard way.
  • Be good to yourself. Be kind. Remember it took years to get here. Keep in contact with a medical care provider if you can’t be certain you or others are safe while withdrawing. Realize it takes time.

    20160604_210004

I am not having a good time with this and it isn’t looking ladylike when I rage and roar…but I am determined to find peace without handfuls of medications that do nothing in the long run. While all of this is not so great of a time and at times quite embarrassing, if one person reads this with chronic pain or PTSD and keeps from getting themselves from being addicted to prescription pain and anxiety meds then I have done a good thing.

I am sharing this because I want to help others. There are other options to all the pills our doctors so freely hand out. I hope if you are reading this…it’s before you have a 20 year habit that you don’t even recognize it is a bad habit. I was just following doctors orders.

Meeting small goals

As rough as it’s been I am going to try to focus on something positive.  It’s really a challenge these days to view my gratitude list because it seems so  bereft of anything but necessaties.   I met my goals for the day~!

I had three goals.  A shower, eating something decent, and a meeting.  Of course, if I broke it down into actual steps, it would be more than three.  All of these required steps.  Gathering clothes and toothbrush and getting to the bathroom and undressed.  Oh, and making a cup of coffee and making the bed.  If I get out of it to get dressed, it’s getting made!!!  Drying off and combing hair about wore me out.  Then to gather my bag and keys and the dog and something to drink and head out the door.

Driving.  That is a task.  It requires concentration and mindfulness.  There are some days I just can’t do it or shouldn’t do it because I would be unsafe.  From lack of concentration.  From medication.  From fatigue.  But today I drove.

I sat in my meeting and listened to others and participated and shared my thoughts.  I can’t talk without crying right now…but I shared in spite of crying.  It is because of my group and the help they have shared with me over the years that I forced myself out of bed at 6:30 in the evening.

I also went to the store. To get something to eat.  I’d rather eat something from the store than the junk at a drive through.  As well, I don’t  have the money for a drive through but still have money on my EBT card.  Well, not money per se. I can’t get cash, it’s only for food.  I walked through produce first.  What are the prices, what is going to taste good, what is healthy, what do I want, what do I need?  Decisions, even the basic ones, are so difficult.  I grabbed a couple oranges and a couple apples and some sweet potatoes and a bag of salad.  That gave me a bunch of colors!  Colorful food is good.  Right?

I grabbed some organic TV type dinners from the frozen bin.  I think I’ve only cooked twice a week or so in the last 3 months.  I am not inspired or feel wanting to be in the kitchen at this house.  The counters and sinks are full of dishes (not mine, I do my own each time I fix something) and there are ants all over the place.  Let’s see…oh, and I got some sprouted bread and ice cream and 2 candy bars.  I was following my diet so well, but nothing has tasted good and I have no energy to make things and so some treats beckoned me.  Dear Lord, please help me not make food be something I use to deal with my feelings!  I am a pretty healthy eater most of the time, so I am going to cut myself some slack.

I got home and things put away and ate a salad and a piece of fruit and tried one of the dinners but by then I was full.  I undressed and climbed into bed.  3 hours and I am done!!!!  I met my goals.  I felt anxious and overwhelmed at times, to the point of tears while driving…but I did it.  I met my goals for the day.

If I go back and read all what I just wrote, it makes me almost wanna laugh!  When I think of how my days used to be utilized.  Up at dawn and cleaning and studying and getting ready and going to work.  And coming home and cooking  meals for a family.  And more studying.  Meeting with friends for social time.  Doing things with my kids.  Keeping the bills paid and the paperwork caught up and the car washed.

Today I took a shower, got some food and ate it and went to a meeting.  And I am grateful for that.  It’s way more than I did yesterday.