Labels are for soup cans, not humans.

I am a human, not a soup can wrap.  Please don’t label me.

“Red and yellow black and white, they are precious in His sight”, was my first real interaction with human labels. From there, the progression escalated in less than loving titles and comparisons.

Some that were less than desirable were attached to me. Names such as “dogface” due to my terrible issues with too many teeth in a mouth not designed for large glaring teeth. Or how about “Bertha” due to my prominent derriere. Then there were labels such as “depressive”, “anxious”, “crazy”. Wow, those really make a person feel cared about and part of.

I did have some positive labels atrributed to me over the years. Labels such as “hard worker”, “high intelligence”, “care-taker”. These labels, while often viewed as positive labels, were hard to live up to when I was struggling with a multitude of health issues that no longer allowed me to feel confident in these roles. Some days I couldn’t live up to them.

I recall when a dear neighbor of mine who was often a role model for my children called one of the neighbor kids “nigger”. I recoiled. I actually arm punched this 80 something year old. I exclaimed, “I do NOT want my children subjected to ANY names towards ANY humanity EVER! If you cannot respect my wishes you will no longer be part of our extended family and friends”. We eventually came to an agreement, but I would NOT be dissuaded on my stance!

I have had so many labels attached to my person, it would be hard to figure out who I really am if I was prone to molding my life based on others perceptions and views and labels.

How about just taking me as I am. I’m Debbie. I am a woman. I am a mother. I am a grandmother. I am a daughter. I am a sister. I am a friend. I am a nurse. I am human. I care. I make mistakes. I do great things . I love! I give! I am caring! What I do is so much more about who I am than any label anyone could conceive to attach to me. Additionally there are labels that used to fit and no longer do.

How about “Dog Face”. I got my teeth fixed. I have been told over my lifetime that I am beautiful and have a wonderful smile. I am no longer a “dogface” person with a messed up mouth. That was fixable.

How about the label of “Depressive”? I currently am not depressed. In fact I am really enjoying my hopefulness for a brighter future.

I highly suggest each of us be very cautious when using labels. Those labels may not be accurate, they might not be appropriate, and they might not be any where near correct! How about we just meet one another with open-ness and respect. Leave the labels to soup cans!

 

 

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18 months since I jumped: An update on healing

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I am able to recognize my blessings each day and be grateful for all I have and have hope for continued blessings in my future!

Greetings from a highly improved me!   It has been eighteen months since I jumped (abruptly discontinued) from taking Ativan 1mg daily after tapering from taking Ativan 3mg daily. I tapered over the duration of two years. My severe detox and withdrawals period was exacerbated by the fact that I had jumped off Oxycodone 10mg only two months prior to stopping the Ativan.  I had tapered off a daily dose of 45mg-90mg over a 2 year period.   What had started in 2010 as a prescription for Percocet 5/325 one every 6 hours as needed for pain, grew until it became a monster in my life that ate all the goodness up. It was just one of the numerous medications that I was prescribed over two and a half decades.

From my records dating 2010 until the fall of 2017 I had 19 pharmaceuticals prescribed to take on a daily basis. Many of them for longer than the recommendations written in those little tiny informational packets you get sometimes with a bottle of pills. Many of them were also prescribed for things other than what they were originally created to treat. Off label uses.  My PCP (Primary Care Providor) also had recommended numerous over the counter medications and supplements as well.

 

                                                                I can smile so much easier these days 
I had been quite aware of the perils of addiction as I have personally witnessed and experienced it in my life in many forms and throughout many experiences.  My own addiction (maladaptive coping mechanism for suffering) was gambling. I knew what it felt like to not only crave something, but would go to great lengths to have that need fulfilled.

That is NOT how the medications were for me. I was dependent upon them. I took them as prescribed. I was trying to check IN to life. I was trying to find a way around the pain (both physical and emotional) so that I could participate in life. Yet the conditions continued to mount until the amount of medications my PCP prescribed became toxic! They didn’t work anymore.  In fact, some of them created a paradoxical effect, causing the exact symptom they were meant to treat.

When I recognized that the use of all these chemicals was harming me more than they were helping, I knew it was time to make radical changes in how I was managing (or letting my PCP manage) my health. I took back the reigns and sought a different path
It wasn’t really a conscious choice, embarking on the journey through the hell I have been through.  It was simply the act of starting a forward movement towards change by doing just one thing differently. Then it grew to more things differently. Things like spending a lot more time outdoors. Activities such as interacting with animals and being creative with a camera. Making very conscious choices in what I put into my body. Eliminating as much negativity as I could. Yet, there were still struggles as I didn’t know all that I would face along this journey.

No one had warned me that there was a possibility that I could have psychotic episodes coming off these medications. No one had warned me that I could reach tolerance and have paradoxical effects like a severe case of insomnia that lasted for 20 years. Only now, after being off every single medication for 40 days, am I beginning to have occasional bouts of normal sleep. No one told me about excruciating bone pain that left me curled up and rocking and crying on my mattress. No one told me of the incessant need to move, the rocking and bouncing legs and full body restlessness that was exhausting and robbed me of any rest for my ravaged body and brain. No one prepared me for how shunned I would feel and how that would further the crippling agoraphobia and paranoia so that I could not tell who I could or could not trust. This further complicated the entire process.
No one else knew how bad this would be either. I know now that there was NO one in my life anywhere close to prepared for the wild and horrifying symptoms and behaviors this would create.  It was terrifying to go through and I can imagine it was scary as hell to watch! In fact, knowing many others who have endured the hell I have, some even worse, I know that very few people in the world have been prepared to be of any assistance for someone going through this type of severe and lengthy mental and physical anguish.
That first year was a doozy! Fraught with the loss of health and home and any stability I believed I had, pretty much everything was gone in my life! Friends, family, belongings, any sense of dignity was gone.  I was robbed of all hope by the Benzodiazepine demons that lived in my head. All I did was bounce where the winds took me, trying to protect myself from me, and from others who were ill-equipped to be of any help.

Unfortunately, sometimes due to their lack of understanding or skill, those I most hoped would help were only able to add to the pain and suffering by their responses and reactions to me.   Those that truly care would have done different if they had known how.  I believe this is true for all of us suffering from this.  Yet they are the ones who just mostly stood by and watched and felt helpless. They had nothing to offer except recognizing the pain was there.  Today I can feel bad for their experience in watching all of this hell.

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This last 6 months I have turned a corner. I can feel it internally and others have commented on it externally. I have been more focused on myself and finding healing and seeking the path to wellness than ever before in my entire life.  The tools and skills and interactions and experiences I have participated in have helped me have a sense of acceptance and peace.  I truly feel more equipped to deal with whatever life may bring to me from here on forward.   More than ever before in my life I have a sense of direction and purpose.
I still have much work to do. Both of my current therapists are recommending intensive treatment for Complex PTSD (Post-Traumatic Stress Disorder) including modalities such as ACT (Acceptance and Commitment therapy), CBT (cognitive behavior therapy), and EMDR (Eye movement desensitization and reprocessing). Both of them say it is imperative for me to do this work for complete healing and the ability to get past the things that haunt me regardless how much I try to not let them.
I personally have taken it upon myself to learn life skills that I have found are helping me tremendously. I have adopted the practice of meditation. I meditate at least once daily, but usually twice a day. MY meditation is very much connected to my spiritual practice and prayer time. I also do Conscious breathing, utilizing a timer to just stop and breath once an hour. These skills have reduced my anxiety tremendously and are excellent for staying in the moment which is so necessary for those with PTSD.  I eat at least an 80/20 whole foods diet, primarily organic in nature and from sources as local as possible.

Since the New Year I also have been working on having the habits of movement (exercise) and drinking more water daily. I have also begun light jogging. This I am doing still with living under the fact of pain is in my life. I have nerve pain in my feet that is non-stop 24/7. I also have pretty severe back and neck pain. Yet after a 10 week-long session at a pain clinic, I have learned some wonderful new ways of looking at pain and living with it. This is why I now am more encouraged and hopeful than I have been in an extremely long time. I feel very empowered.

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Yet I still need help. I am still homeless. I still have no vehicle.  I am still awaiting a determination on my most recent filing for Social Security Disability. I still have a couple of years ahead of me doing some really difficult personal therapies. I still have limited energy and endurance.
After careful consideration, counseling with others, and making efforts to find stability and a place to live and work both where I am and where I last came from, I have decided to go back to S. Oregon.  I have more work I can do there than I have been able to find here.  I ran an ad and I have already booked 3 house-sitting gigs. I also have a couple of clients that want me to do periodic light work around their properties (gardening and housekeeping type chores). I have a friend who has offered me the use of her trailer for 11 months, and I have a couple of possibility of places to put it in exchange for helping on a person’s property either with care taking or with farm type chores.  I am willing and able to do this. It won’t be enough to get ahead, but I will have a roof over my head and some security for at least that time period.

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I have been offered a trailer like this to use for about 11 months if I can get a secure place to park it! High living for a modest gal like me!

What I need more than anything right now is a vehicle and maybe the first 6 months of insurance paid.  Or even the first 3 months. Then I can get to the house sitting jobs and the clients who have other chores to do. Then I can earn a few pesos each month. My goal is $600, which is 30 hours a month. I will most likely have to do that many hours again where ever I end up parking the trailer in exchange for rent.  That works out to about fifteen hours weekly of being up and moving and doing some sort of physical activity.  15 hours a week is about all I can do without being where I can lie down and rest intermittently.
I know I will keep improving as I continue to do the habits I’ve created and use the tools I have obtained. I know my energy will increase as I continue to lower the stress of dealing with PTSD through the time invested in treatment and as my body continues to heal from the damages done by the medications I took for too long!


I also am involved with Vocational Rehabilitation.   They are going to help me pursue the reinstatement of my nursing license. It is my short-term goal to utilize my nursing license in creating a health and wellness mentor and coaching business. I believe I have a vast amount of knowledge and experience that can be used to help many others who live with physical and emotional pain. I believe my new-found enthusiasm and gratitude for a new opportunity can encourage and inspire others to pursue their truest selves! I have been a helper and have had a healing nature throughout my life. Now that my true self (not drugged by pharmaceuticals) is re-emerging stronger than ever, I trust that God and the Universe will allow my best self to help others possibly find their way out of suffering too!

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Participating in an online Health and Wellness coaching program. It is self directed and self paced. Perfect for me right now. As well as it is FREE!!!

I am so grateful I am still here on earth and alive. I am so grateful the benzodiazepine (and other pharmaceutical) demons did not completely destroy me. It felt like I was destroyed at times, yet here I am smiling and grateful and caring for myself….and others!

After such a dark and seemingly endless foray into the depths of psychological pain so deep I felt life wasn’t worth living, I now have hope!!!  I also am able to develop goals.  It is the first time in many years I have felt capable of even thinking of having a goal, let alone taking the necessary steps to get there.  One of my goals is to  jog/run in a 5K event the weekend of my 56th birthday.   My new walking habit inspired that goal.  I have never enjoyed running or jogging, even as a child.  Yet now, when pushing through the chronic pain, I find that I reach a point of some real clean current pain and it is a desirable experience.  Pushing past the pain to get going is worth it.  The daily steps I am taking are to keep me focused and to build my skill and strength level to reach that place of being able to complete the race.  After the race,  if I still feel it is something that is adding value to my health and life and wellness, I may try for a 10K.  It is a measurable success.  There are other goals as well so each day I purposefully do actions to bring me closer to the prize…..WELLNESS and HEALING!

I also have a great aspiration to help others like me!!! I have a big dream of someday creating a healing place (long term inpatient facility) for those like me who have suffered in their lives with DIS-ease of any kind.   People wanting to come off pharmaceuticals that have become toxic to them, especially opiates and benzodiazepines; those who suffer the consequences of addiction; those who have emotional pain that requires that they be loved on and guided and encouraged to health! I envision a place of many woods and streams and much beauty where people can rest their tired minds and bodies and take a few deep breaths for a period of time. I see gardens and animals, some of them providing companionship, others there for their food source to provide healthy nutritious meals. It will be a place where there is patience and tolerance and gentle trauma-informed guidance. People will have a time and place to explore their suffering and learn skills for finding peace and acceptance of what is.  I dream of it being a place they will also find a sense of purpose and the ability to create goals and plans for achieving them. It is a big dream. It will require a big tribe to create it. That will be a huge focus on the next portion of my journey. Creating a healing caring loving tribe that can share this vision! 🙂
oh….btw….it feels great to be able to write a bit! That is one skill that has suffered during this time and it is another sign of my healing!

A time to write

https://nobetz.wordpress.com/2015/02/

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I had to gear up to do some writing. It’s been too long. Part of it has been time management and part of it has been deciding what I want to write about. Just now, for inspiration or a jumping off point, I went back to rereading some old posts. I find it interesting that just last year I wrote about how I’ve felt this last couple weeks and am just coming out of it. Years of this winter struggle.

Years of this struggle in the winter, so I go into my hole….my winter hibernation and yet I continue to be denied disability. I’m penalized because I don’t go to the ER or to the psyche unit where I know what happens and it’s all about medications. No…I go within and therefore don’t cost the tax payers money and really am not bother to anyone. I know that is what happens, when you get indigent care or some kind of charity.

That is the wrong way according to the judge. I’m better off letting myself go bat shit crazy or go to the ER every time I have an ache or pain. Because I didn’t go to the doctor for two year other than to the Emergency Room only two times, apparently I can’t be that health challenged. Ummm, those were the two years I didn’t have insurance. Although I don’t think Obama care is the answer, I am grateful that I did at least start getting some answers to my conditions after I got healthcare in 2013.

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By pushing my PCP, I found out about my food allergies and I changed my diet. I don’t prescribe to their answers for treatment and that also doesn’t get me any support for getting disability. For me, it’s not all about their pills. It’s about what I put in MY body. In the last few years, I’ve done a better job at making myself healthier physically and emotionallythan the present health care system ever has, and mostly without medications . All they gave me was band-aids. I ran out of being willing to just use something to cover it up years ago.

I have health issues. Some affect my physical body, and some affect my mental abilities.  Just like every other human being. I have found that eating healthy (or at least something your great grandparents might have ate) and mostly at home and using as natural as possible treatments in conjunction with some medications that do really seem to help over the long term and their side effects are tolerable is the best way for me. It is sustainable if healthcare isn’t available.

I think that is another of my major concerns in why I treat my ailments more in a natural way…or doing some hibernating…is better overall for me. It’s sustainable. I have conditions that have affected me in life changing ways over a LONG period of time. Sitting in an ER for 6 hours only to have them say things like “it’s just …” or “just take this xyz pill” is not my solution for the long term.

Anyhow…obviously in re-reading last February’s post I had to refer to it. It was appropriate. I read it and just started writing. There you go. Finally a post in 2016!!!!

It is going to be a GREAT year….up on the hillside! I don’t know what it’s going to look like and I don’t have any unimaginable expectations. I just choose for it to be good~

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