Day 6 and the worst is over I hope!

Today, I spent some time trying to piece together the last 60 days. It’s hard. There are lots of big spaces of time I don’t remember much. That scares me. It’s evident whatever happened freaked out my loved ones in a big way. I was on the phone saying so many things that were not at all what I was wanting to say but my brain just was somewhat frying. It just was what it was.

Which of course adds to my shame and guilt.  I have not had that occur since I quit gambling. Yes, I’ve lost control of my emotions before, but I have had no “out of body” experiences like I experienced this time. I sure am glad I write tho, because I can go back and somewhat piece together the build-up, the blow, the loss of time, and then I went straight into detox for the Xanax withdrawal. Not the smartest idea in the book. But hey….who said I was thinking in any congruent way during this time?

Although extraordinarily fatigued with pain increased,  I think I’m doing pretty well. I am stronger than I remember sometimes. While I was feeling so weak, I had some idea of what I wanted. I have been on a journey to get off these pills for nearly 2 years. I wanted to get my overall health and strength a little better because I knew I was getting to a place I was ready to deal with some more of my “stuff”.

I did know I was having some PTSD triggers There were some encounters with people I cared about where I felt under attack so decided to disengage from those relationships. That is not something I do lightly. Yet, in retrospect it showed I was getting stronger because I was able to say to myself, “this is not healthy for me”.

In late February or early March was one  occasions and I handled myself with composure (maybe showing a slight displeasure but that is all) and then returned the next day to discuss the situation and stated what behaviors I could handle. That is a HUGE thing for me.

As time passed and other situations occurred I knew I needed to do some digging to see why I so easily get triggered by certain personalities. To be frank, I believe it’s because of my mother and our relationship and her behaviors. There are certain behaviors in women I just cannot tolerate at all. It gets my ruff up so bad and I have to just clench my teeth. Pointing, especially if someone pokes my chest, intimidation posturing, badgering, and overly aggressive. I have a tolerance and then it just is gone. It was like I was doing okay, handling each situation the best I could while trying to be professional in my role as “property manager”, and then it was over the edge.

I had told a few folks about my encounters and how they were affecting me. I had thought I had stated I was getting very stressed and overwhelmed, but again, I believe others hear it as “whining”. It was in late March that I picked up paperwork to get back into counseling. I didn’t get it turned in until mid-April after recovering from the flu. I didn’t get back in until  about the end of June for intake. Back in late March I knew I was over-stressed and had taken on more than I could handle.

In my perception a great deal of the stress came because what I perceived as agreed conversations on what was going on with the property and tenants wasn’t happening. I also had a situation with a friend and it was just the last straw.  I was so overwhelmed trying to get this property ready for renters. I had to help pack up a house that was full of many collections. Tapes(VCR and Cassette), books and mountains of electronics. The entire second story was just storage! I also had to get ready for an Estate Sale. I had never done one before and what a TON of work that is. I also had to help Mr. Chicago’s brother find an apartment and then I had to help him figure out how to make a home for himself in his new place. January was exhausting.

Then in February I was still doing okay after taking a little break, but that is when some of the encounters with PTSD triggers really started. After the first one I was shook up and tearful for a couple days. Then I tried to rectify things in an adult manner and carried on. Then there was another encounter in March. Again, I held my tongue, waited a day or two and then tried to rectify it. I also was telling my family and loved ones about the stress this was bringing me. Yet, no one is around me to actually see what those affects looked like. Often when you have PTSD triggers in my mind I feel like I sound like I am “complaining”. But what I’m trying to convey is I am getting over-stressed and I can’t make prudent choices and I need some help.

I had my trip to Chicago in late March and then came home and landed in the hospital for 4 days with the flu and pneumonia and when I came home and got well enough I had to stretch myself again. I was interviewing potential land renters. I had to run ads and make phone calls and then talk with these people at length regarding their needs and what we could provide for them. I am not a good salesperson. It makes me very uncomfortable, so I was stressing about that. More stress. I am feeling like I am falling behind here. There is so much work to be done and I am coming home after a nearly 2 week absence and it’s time to start the gardens and I still have things to haul to the dump and things to sale and continued encounters that were less than comfortable with some people.

Then came May. I did forget to mention that I had a very serious family issue that occurred in January that was an ongoing concern and stressor until early June. Those of you who follow my FB page remember, Mr. Chicago came out for my birthday in May. It was truly the BEST surprise I’ve ever had for my birthday. The BEST.   During the time he was here I was able to show him a little of what the issues were but by that point I was definitely at a point that any more encounters with triggers was going to set me off. But to him I’m sure they seemed small, each little instance.

That is not so for someone with PTSD. I’ve only had one occasion where it was a single incident that triggered me. Even at that time, I had been under a LOT of stress. Typically when I go into a meltdown mode (post gambling…completely different scenario) I have had a number of stressors on top of a number of triggers. I can only take so much. Which, is another reason I have been trying to get disability.

Having a disability like this doesn’t mean I can’t function or that I’m not smart or capable. It means I can’t take the daily struggles like a person who doesn’t have a  disability. Over the years I’ve tried to explain so much.  I can do a little physical and deal with the pain, but then my stress will get up and so I can’t deal with people or additional stress. Or, I can be medicated and take it gentle on my body and not do a bunch of hard things and my brain works. In fighting chronic pain as well as mental health issues life gets very overwhelming at times.

After Mr. Chicago went home, I thought we kind of had things under control. But that was not the case at all. There were still unresolved issues that came up and a number of incidents that made me uneasy around the 12th of June and that was when I started going over the edge.

After my first blow up, I had a few days where I just was telling everyone “I’m done”.   I am not able to make these decisions. I was trying so hard to take care of the area here and do a good job. I went up and down and up and down for a couple weeks and then settled down a bit. But by then, I was really struggling inside with a lot of things.

I didn’t feel safe anymore. Because I had “acted out” I was scared and embarrassed and pushed everyone away more. I didn’t want anyone to see me unhinged. The lonelier I got and the more I tried to figure out what I could have done different I just got more and more distressed.

I tried to “pull it together”, but I had forgotten that back in May I had purposefully come to the point that I wasn’t gong to refill the Oxycodone anymore.  That had been my goal and I reached it and was doing okay. I didn’t take into account how that my affect my mental health when I was already under stress. I continued to rage and then cry and then rage and then cry. I’ve said “I’m sorry” so many times in the last 2 months and then gone and done the same exact thing.

That is what happens when you have a PTSD breakdown. You feel okay for a few minutes and think you are okay to be around others and then Every Little Thing bugs the hell out of you. Drivers that are speeding and reckless caused me to be the same…trying to chase them down to tell them what crazy drivers they are. Ha ha ha….and who was the undone woman chasing them? Yes…that was me! Hence the limited driving these days.

So June ended and July rode in and yet another big stressor met me on the 5th. Something that made me think of bad things from long ago. I tried to explain to the other my feelings but was met with resistance. This made me feel even more unworthy and increased my angst.

So on 7/12 I had ran out of Xanax and decided not to go to town to pick up my prescription the next day. I had made a choice. Not wise, with my thinking at the time, but it was just me here and I was going for it. The first night I found out some information that truly just made my head burst. My head has been racing and my heart has been racing and I became obsessed with this information and it was rough that first day or two. I was not only going through Detox and PAWS, but I was in the midst of a mental health breakdown and kept getting news that left me feeling so alone and so WRONG for everything. Lots of thoughts of “why am I here?”.

That’s the mindset of a PTSD person. When I am in a PTSD head, I am in total fight/flight mode. I feel horrible. I think I am the worst person in the world. I want no one to see me. I don’t behave in ways that are typical for me. I get quite mean (to push people away) I’ve been told. I typically am NOT mean! I am a lover and a giver and a smiler. But under duress from a PTSD flare I can dish out some verbal bashing and be quite harsh.

I hate that. Which is a big reason for going back to counseling. I know I still have learning to do. I am hoping by completing my detoxification off the narcotics and benzodiazapines my head will be clearer for doing the work I have in front of me.

I know nothing about my future right now. Neither do you…if truth be told. I remember my counselor telling me that I learned early in life, it can all change overnight. In the meantime I am hunkering down and just trying to take care of myself. I deserve it. So do those who love me. I despise scaring them so. Evidently, as I was recently reminded, it’s been going on for some time.   When I get to my lowest I have very pronounced suicidal ideation. I forget about it for the most part when I’m well. I know how that feels as my mother suffered with the same. It is very hard for those around a person feeling like this.

Today has been the clearest my mind has been in a very long time. A very very long time. Even with the fatigue of not sleeping the last two nights (going on being awake for about 58 hours now) my brain is clear. I truly am grateful for being able to finally get off all that.

The cannabis is working. The dosing is not exact, yet. Just like me. I’m working on it. Thanks God for a gentler alternative that comes form the earth!

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Day 5 – I’m gonna live!

 

I do not think all medications are bad. There are situations where pharmacological medications are curative or the benefits outweigh the potential risks or side effects. At this time in my life, having been on a variety of pharmacological medications with less than optimal results, as evidenced by my struggles (breakdown) the last month, I am wanting to go a more holistic way. It started with medical cannabis and I now am more interested in what nature has to offer.

One of the main reasons for doing gardening and animal care when I am in such a challenging financial and physical and emotional situation is they give me purpose on days I struggle. I am so grateful that I started that.  Putting in a garden and attracting butterflies and hummingbirds gives me something pretty to watch and look for. Being out in nature and getting a little exercise is one of the BEST medicines there is. On many days when I am in pain or just overwhelmed, having those things I MUST get up for …makes me still have a life. Hey Sigmund has done a nice outline here of a more holistic approach for mental health strategies.

http://www.heysigmund.com/the-non-medication-ways-to-deal-with-depression-that-are-as-effective-as-medication/

I started off using the medical cannabis (MMJ) mostly for pain. I was on fairly high doses of Oxycodone and it wasn’t working. At least not enough.  This contributed to my IBS for certain, causing severe constipation.  MMJ has been a wonderful option for getting off opiates. It also has improved my mood greatly, until I get into a panic situation or PTSD gets triggered. I still having to do some learning on that. I have a couple strains that I have been given or bought (thank you to the growers) and it works. But the medication I need now needs a special license to process and so I can’t get it as easily. Rick Simpson Oil (RSO) was the BEST cannabis medication I have had to date that helped me the most.  I was calm and pain was much better controlled than with the opiates.

To get the strains that I need for anxiety and PTSD challenges I have to now go the dispensary. In one week I went through $100 worth of RSO and other types of MMJ products in addition to my usual use of the tinctures and butter and flower I have already at home. I can’t afford that. I sure hope they don’t take out the OMMP because of recreational. This is my medication now.

I had it suggested to me to try some skullcap when my belly settles a bit more. It’s a nervine. Nervines are an classification of herbal remedies for mental health conditions that have evidence of high anxiety. I was also told a student of herbology that nervines such as Skullcap can actually help in the healing of my brain after long term use of various medications. Hearthsidehealing in Portland, OR presented this article on nervines written by Jon Keys.

http://www.hearthsidehealing.com/nervine-herbs-for-deep-relief-from-anxiety-and-stress/

While the last few days have been incredibly difficult emotionally, I have no desire to take those pills again. I do not crave them at all, which is a bit strange based on dealing with my gambling disorder and the drive I had for that. I feel that with the medications I was more dependent on them, whereas the gambling for me is a true addiction. But in all honesty, I really had no idea I had an emotional attachment to the medications. They were prescribed by my NP for my various ailments over the course of the last 5 years. Some of them I had been on for nearly 20 years off and on.  When one has a number of medications like that there is always concern about them being discontinued, or brands changing (can be very difficult for some), or your doctor saying after a number of years prescribing, “no more, we have to stop this”. Or there is confusion about getting it refilled. It is really a painful experience to be taking 60-90mg of oxycodone a day and then not have it for 36 hours! Very painful.

I think this is the 5th night since my last dose and while life isn’t bubblegum and rainbows, it’s better than it was 24 hours ago. I even ate! That is one of the big side effects with my withdrawal is NO appetite. Additionally, I think I have only had about 6-7 hours of sleep in the last 3 days. For tonight I’ve made myself a nice hot cup of cannabis tea. I feel very tired. But not as despondent  and sick as I was off and on the last week. Yay God!

Only two sleeps and I will see the counselor that I have seen before.  As well as my NP was to be putting in a referral to a psychiatrist for me.

I really appreciate those who are following. I hope you share this all over the place! I really want people to know what detox from a benzodiazapine after on and off use for 20 years looks like. I want people to know it’s possible to improve from a dependency, an addiction, or a number of mental health ailments by making just a few lifestyle changes. And help me remember that the only person I really need to take care is me. 🙂 Peace!

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**This is no way an endorsement for taking yourself off medications.  I have discussed this with my Nurse Practitoner and it has been a slow taper over 18 months.  One medication at a time.

 

 

Nature is all I can do

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Well, life is pretty weird right now. I need to leave where I have been, I have no money or ability to earn some (have you tried working while going through detox and PAWS), no where to go and I’m detoxing off Xanax and already in PAWS for opiates. Life is just flipping dandy. Ya know that saying that God won’t give you more than you can handle…well that is just horseshit. I have had plenty in life that has made me be how I am. I give I give I give. Just because you are alive doesn’t equate to really living. Yeah, I’m still a living breathing being, but I am not able to live my life at all how I would like right now. Not even close.

So, I’m trying to act like I’m not totally off my rocker. I’m trying to find a place for my dog (she is definitely going to make a great companion for someone if I no longer can provide for her) as well as someone to trap and relocate Hazel Hideycat. I’m still watering all the plant life around here.

I’m not sure if anyone will keep up with the flowers and trees, or feeding the hummingbirds, but I can’t take care of it anymore. It’s obvious when you view the photos that I am not capable of keeping it all done. Just not enough knowledge, energy or money. But someone, if they want,  will be having some squash and some lettuce and cucumbers and beautiful flowers.

Not to mention the lovely medicine I’ve been growing. I have donated that to a friend. If I am able to manage being here now and then, we’ll share in the reaping of the harvest. If I am unable to come back when I leave…which is hopefully very soon…then they will be his. I really am quite proud of them. I’ve tended them for 3 months and 3 days. I’ve loved them and nurtured them and fed them and talked to them. I have no doubt if I would have been able to do what I thought I I was going to be able to do here, I would have been in good shape after harvest.

Evidently this is not the place for me.  Just like so many others places.   Me being here is a drain.  Me being anywhere that is not by myself is a drain.  I do not want that for my life.  If I can’t be self sufficient then there is not purpose.  Everyone here can contribute more than I can. I am no longer needed. I’ve served my purpose and now it’s time to move on.  People have homes, income and a place to do what they choose.  I made it great for quite a few folks.

So, for the time being I am working on getting the older little trailer in condition to put what I absolutely need to have to survive into. Really grateful for my son’s ability to build a new bed. I’ll just be moving my clothes and personal items over. Then I can clean out my 5th wheel and sell it as ready to live in with a mattress and dishes and everything. That will put a few pesos in my pocket for whatever is next in life.

The next 48 hours should be really interesting. I have not been without a Xanax at bedtime for over a few years. I was down to 1mg, but now I’m completely out and I am not going to get more. I also am going to do all I can to stay out of a detox center or a hospital. I would much rather hike into the wilderness and find my way there and let whatever happens, happen. I am tired of trying to live the way I have been. I would rather tie myself to a tree and cry and scream and rant and rave all alone than put that upon anyone else.

If I knew of a safe place to go, where they wouldn’t just put me back on meds, I would go there. If I knew of a place where I could be safe, where I could know some true security, I would go there. I’ve never known a place of safety and security at all in my life. Just when I think being safe is okay, sharing who I really am is okay….it ends up destroying me. Being alone is going to be the only way I can have some semblance of sanity. I have no trust in anyone or anything except for animals and plants. They never lie. They show how they are cared for. Humans show what they are about. It has nothing to do with me or anything I do. They just are how they are. So now…I take a leap into another place.

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Jumping from a bridge at Lake Billy Chinook at age 44

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Day 63 – Alone is best

Alone. By choice. I’ve decided to be alone. It’s easier for me to decide to be alone than to risk being discarded or abandoned yet again. The feelings of unworthiness and being tolerated by others only if I am that girl I used to be is more than I can tolerate.

You know…that girl! The one that never stopped. The one who was always there. The one that continually took care of others for years and years, but God forbid I can’t pull it together physically to take care of myself, let alone the shame of when I have mental disasters.

It’s really not surprising I have no self-esteem left. What an embarrassment I am. I’ve been homeless for 5 years. Yes, I have had a roof over my head, but no stability. I hop from one place to the other trying like hell to be worth at least enough to live on. Yet, for a variety of reasons, I can’t seem to manage. I can’t even manage to do what is required to keep my trailer somewhere and earn maybe $300 a month for my basics.

It seems I have a 6-7 month window. I go in doing my very very best trying to make a good impression, and then when I have a bad pain day (which is the primary reason I’m in this situation) or my depression flares up and they ask me to do something I can’t hardly do on a good day, they (whomever is my landlord) become disappointed and say things like, “well, it’s obvious you can’t manage the work here so you need to move along”.

Recently, where I have been parked for the last 9 months (a record), no one has said that, yet it’s been like a big billboard in my front window for a few months now. I really should have left back in April. Before I started the gardens. Before I felt vested in things I was doing on the property.  Before I got a cat, or started feeding the hummingbirds or planted flowers for all the other bugs.

I feel so dumb now. I should never have believed that I might truly have some security and stability. I never have had it so why should anything be different now? Especially since I can’t maintain the performance that the world requires of me in order to do more that just get by.

I have to laugh. I remember so many people saying if I would just stop gambling I could have the life I always wanted. Well guess what, I haven’t placed a bet in 6 years and 5 months (in 5 more days). I have worked my butt off recovering from a disease that nearly took my life. In the mean time, the person in charge of my medical care has done a great job of getting me dependent on pain pills and anti-anxiety meds and pills for my muscles and pills for my depression and pills for allergies and pills for diarrhea from my allergies and meds for constipation from the pain meds. That’s just the prescription things.

So, on my own I have weaned myself off everything except for the anti-depressant and one Xanax (anti-anxiety) at bedtime. I do still occasionally need my Lomotil (prescription anti-diarrheal) because I still sometimes try to eat at somewhere new and invariably it gets me or my nervous anxiety causes it. I have one Xanax left. So…that leaves just one medication daily and one for as needed.

Guess what? I’m not living the dream. It’s always just beyond my reach. It always has been and it isn’t going to change anytime soon. The big sign that continually flashes before my eyes says “That isn’t for you”. Stability and relationships that last and managing to live among others is out of my realm. It has been since I was less than double digits in age.

I can’t ever be what has been expected of  me.  So I’ll be alone, and try to figure out who I really am.

Self Care for PAWS

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Up and down and up and down and around the bend and back again. Battling through PAWS (Post Acute Withdrawal Syndrome) is like being on a roller coaster ride, on the mixer, walking around in the funny house and sick with the flu at times. Add to that my PTSD being triggered and it’s been a rough couple of weeks.

To be honest, there are periods of time I don’t really remember much. I have pieced some things together from those that I’ve talked to on the phone or who saw me during those days as well as various texts and emails.  I wasn’t very nice.  I lashed out at those I love the most during the worst of it. Including myself. PAWS can be a serious medical condition. There are times I have felt very disconnected and it’s taking all my ability to maintain some semblance of “normal”.  I’m sure there are a few of my people that would have liked to see me be hospitalized for a few of those days.

While I did have a long morning in the ER after one of the most rough days/nights, (un)fortunately they let me go home. There had been paperwork filled out to put me on a hold, but I know what the hospital means if you are detoxing and/or going through PAWS. It means being stuck inside, put on benzos and who knows what other meds as well as starving because they don’t have any food I can eat. So I pulled myself together and talked with a little intelligence and very nicely and they literally dumped me out in the waiting room. They know what the PAWS crazies are like. They wanted me out of there!

I don’t want it to sound like I take this lightly. I don’t. I am scared out of my sometimes too smart mind. I just can’t see any way through this other than just doing it on my own using medical marijuana. I can’t go to a treatment facility because they will put me on pharmaceuticals and that is what has been making my life a living hell for the last few years. I can’t go to the hospital because that’s all they have to treat me also. I still am taking my anti-depressant and would be happy to consult with a psychiatrist about my PTSD if I could get a referral. I was supposed to have one over 4 months ago, but that’s how it’s been with my PCP, we talk about it and then a year or two later after me reminding her multiple times it finally gets ordered.. Right now I just am doing my best and trusting that those that love me will still be around when I come out the other side. Cuz this ain’t pretty!

 

I’ve been through PAWS before with my gambling addiction. I vaguely remember the jitters and the crying jags and the frustration with having my brain not working right. I remember getting upset easily and feeling a little “out of body” at times when I first started trying to live life without my addiction activity. What is different about this is I didn’t realize that I had any emotional attachment to my medications. Also, when I was detoxing off gambling (yes, you detox off gambling just like alcohol or drugs, it is truly miserable) they were giving me pain medication and anti-anxiety medications.   I was just doing what the doctor ordered. I was taking medications in order to be comfortable living life. Now that I have been off the opiates for nearly 60 days, I don’t crave the pills…but I wish so much for something to make all the bad feelings go away.  I am not feeling comfortable at all.

What am I doing to take care of myself through this you might ask? I admit, I haven’t been that great to myself. One thing is I have absolutely NO appetite and so making food is a challenge. Fortunately my son has been around and so I occasionally feel a motherly calling and will cook for him and then I’ll eat too.

Tonight I was finally able to drive to town to get a few things at the grocery store. I bought some good healthy foods to cook and eat, including a few easy things like soup and cheese and crackers and avocadoes. Things I don’t have to think about to create something to fill the empty spot in my belly. I also found some specialty teas to help me relax and to be positive. Additionally, I am following suit with millions of others around the world and have embraced the idea of coloring for therapy. I bought myself a coloring book and some colored pencils. Combined with a little medicine that should be a great way to be creative and reduce my anxiety at the same time.

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I am really proud of myself for driving to town. Driving has not been a good thing during this particular time in life. I either find myself extremely anxious while driving or I get road rage. These are new things for me. So, I have not drove much at all the last couple weeks. But, I needed groceries and food for the plants and animals too!

The other things that are keeping me grounded are my furbabies and the other wildlife around here and my gardening. I have my dog who is the best. I freaked her out a little the night things got so crazy for me, but she came around in no time after she saw I was home and okay. Then there is my partially feral kitty that was indoors but escaped just about the time everything else took a dive for me. I am slowly encouraging her out of her hiding spot under the deck. I also love keeping the hummingbirds happy by having their feeder full and water nearby for them to drink or play in. They are so beautiful and I love to hear them buzzing around. Then there are the butterflies and the snakes and lizards that catch my eye. They are beautiful and I thank them for letting me get so close to take their photo. Watering the gardens and tending my first few medicine plants helps keep me focused outside myself also.

Many of the things I have growing were started from seeds. I love watching things grow. It gives me hope. Even the flowers that are less than perfect or the cilantro that bolts before I can get any of it…..they all are such a support and source of encouragement to me. They give me some purpose when I am feeling so out of touch with the rest of the world. The living things that rely on me for their care give me so much back. I am so grateful that II have been able to stay here, where I can grow things and be in nature.

It’s the end of the day now. I have much to be grateful for. I know I have a number of people that are praying for me. Thank you. That is another of the challenges with PAWS and the PTSD.  It seems to darken the spirituality part of my life. I trust your prayers will be sufficient, for praying is a challenge for me right now.  I still have hope and I know that comes from something outside myself.

I thank those who have not been scared away but have said “I love you, how can I help?”. I’m grateful for being able to drive myself to town and for a full fridge and pantry. I will do this!!! If there is one thing I know about me, I perservere! I don’t know what it’s all going to look like on the other side, but I choose to view the future as very lovely and peaceful and full of promise!

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Another Day

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The view out back.

I believe the last day I had any opiates was May 10. That means today is day 51. Whew! What a roller-coaster it has been. Physical pain some days, other days tons of energy and low pain, emotional highs and lows, anhedonia, obsessive compulsive behaviors, restless legs, sweating, raging, sleeplessness, tearful, irrational, sensory overload, lonely (this is my own choice to be alone, yet it still is a lonely place).  Yet, here I am, upright, breathing and doing my best!

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Hidey Hazel kitty

Yesterday was a pretty decent day overall.  I started the day opening the blinds in my bathroom.  My veggie garden is my view out the back of my fifth wheel.  Its coming along nicely for what I’ve had to work with.   The best thing was my kitty that had fled the coop a week or so ago is living under the porch now and I got to see her.  I took her food and water.  I also filled the hummingbird feeder, watered the garden, took some photos, got a shower and went out for pizza with my son after we had a little talk.

I finally asked him about last Friday night. That was a really bad night. In attempting to be social and be out, I over-imbibed in alcohol and it was not a good thing. Alcohol while detoxing off narcotics is a potentially lethal mix.  In more calm and rational times having a glass of wine or two is not a big deal for me. What I learned over the last 2 weeks or so is that if you are removing something that has been part of your pain regimen, it is really easy to substitute alcohol. So a glass or two becomes 3 or 4 and then more. I would not make a good alcoholic.  I found that out in just a short couple weeks of doing some “substituting”. I was somewhat aware I was doing that, but I thought I could control it.  I let it get out of hand.  Right now I have to be very very careful of any thing that might be a potential replacement, other than the medical marijuana.

Even tho I’ve been on a taper for over 18 months, my brain knows that those pills are now gone. Those receptors are screaming for something to fill them up so they can relax. That is what causes me so many symptoms. What I am needing is some better guidance on strains of medical marjuana (MMJ) to use.

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My best forever friend

Since I started using MMJ, I’ve only had strains I received as compensation for work and what I received from the person who grew for me last year. I’ve been give a few names and very basic descriptions of what the strain is good for. What I need is some direction and expert knowledge of what strains will help with the anxiety and some of the other symptoms that I have been recently struggling with. I have decided I need to take a trip to one of the local dispensaries. Most the strains I have are good for getting me up and moving. Right now, I need something a little more calming. I’ve visited a couple with a friend once but have not had the resources to spend on what I considered as “extras”, when I have plenty here. What I have come to realize is that I need some specific components and for my health it isn’t an “extra”. This is my medicine now.

I am coming to truly understand that this is a science. I have much to learn. I know from the great success I’ve already had the last 18 months that it can be done. I want this to work and it is working. Had I been more mindful I may have waited to stop that last pill until I didn’t have so much stress going on around me. Yet, I could have made an excuse to keep that pill for quite some time. It was my medicine. Now it isn’t.

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Each day the smile is a bit more

I’m not good at “fake it til you make it”. My brain doesn’t grasp that. What I do have success with is keeping on keeping on. It might not look pretty all the time, but I’m not giving up, even when my head sometimes tells me that sounds like a pretty good idea for everyone’s sake. I have been through so much and I know that there is good on the other side of dark times like this.

My hope for my loved ones is they too remember that no matter what happens, my track record has been good for waking up and making it through the days. And for all of you reading, I wish you the best day possible. If it’s not so great hang on, because tomorrow can be, if you just get through what ever it is you have to get through.  Peace.

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Storms often bring heavy growth afterwards

The Clash of PTSD triggers and Opiate withdrawal….and the CRASH!!!

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As I look back over the years, so many hopes and dreams, always feeling like I was working hard, trying my best. Right now, it’s actually pretty amazing what I’ve done with the deal I got dealt. My life has handed me circumstances that not everyone goes through. The multiplicity of the stress of various circumstances have created changes in my brain. I do not see things the way you do. Add to that, the medical arena not knowing how to deal with my various symptoms and handing out prescriptions of mood stabilizers, SSRI’s, pain medications, sleep medications, Neurontin for foot pain, anti-inflammatories, anti-diarrheals, anti-constipation, anti-anxiety medications….among the top 10! It’s truly amazing that I am sitting here able to even be partially present in my day.

I have learned over the years what some of my triggers are. Certain smells like old medicine bottles, slamming of a cupboard door, yelling of any type. I can not tolerate perfumes. I notice them right away. The same can be said to the feel of clothing against my skin. It has to be soft cotton and loose and not too hot and able to be layered because I can’t regulate my temperature when my adrenal glands are on overdrive.

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So I’ve been trucking along working my recovery from gambling, slowly tapering off all those medications and got down to where I was hardly taking any oxycodone anymore. For instance, I might even have a day or two that I took none.Unfortunately, in late March on my trip to Chicago,  I got really sick with pneumonia and bronchitis, the flu and pleurisy. I was miserable. So, since I had them, of course I took the pain meds. I was in pain. Right?

Then, just a couple weeks after healing up from that and back down to just one dose a day or less, I have this incredible ride on a 1939 Ford F9 tractor down a hill with no brakes and out of gear which caused me to dislocate a rib, and so I had to take them again. I actually had a rib poking out (still under the skin), and shoved it back in. I awoke the next morning to the bruise from doing it. That was late April.

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In the interim period of time that I am kind of subconsciously getting myself off the meds (this has been a slow steady progression since 11/14) while huge amounts of stress  get added. Big stuff in January, then some big triggers in February. Based on my journaling and emails from February through March, I was trying to share that I was not feeling safe, or in a place of peace. Then after I got well from all my ailments, there were more triggers. I tried telling people. I wrote letters and tried to have conversations about how it felt to be triggered and how someone could help me. But if someone has not had to really feel what having a PTSD flare-up feels like, they can’t understand my language. In my mind, I think it must sound like “WAW WAH WAW WAH WAW: and they think I am just being a complainer.

So here is where I am going to say I gave everyone the best I could and I am really proud I hung on as long as I did without exploding in someone’s face. Well….that is, until I did. But I held on for a couple months under what felt like incredible stress with no one speaking the same language as me. I’m sure over the last couple of weeks not much of my language has made sense. I know my brain feels pretty fried.

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You see, without really thinking about it, I stopped taking the pain pills. I was feeling better. I was using medical marijuana with good success. I had stopped the muscle relaxers and the anti-anxiety medications quite some time ago….except for that night time dose of Xanax which is what the NP prescribes for my severe insomnia. Oregon Health Plan won’t pay for anything less addictive for chronic insomnia, so this was my option for a long time. I still have to wean myself off of it.

Unbeknownst to me, combining ongoing PTSD triggers and withdrawal from opioid’s is a horrible situation. Had I thought about it, I would not have done it, but now I’m 6 weeks or more into it and don’t want to have to go through all this again.

So….things you need to know if you have PTSD and you also are considering detoxing off opiates with medical marijuana!

  • Make sure you are in a really peaceful and caring place. For at least 6 months or up to year. No high stress. No high drama.
  • Do a slow taper.
  • I recommend RSO if you have been on high doses of opiates. A Sativa with high CBD for nighttime for certain. Stay low….stay easy. Ahhhhhh.(this is one place I went wrong. I didn’t have the right strains to help with the additional stress on my body).
  • Make sure you have some creature comforts, like air conditioning, a tub to soak in, someone to maybe lightly rub your back or feet while you breath through the rough moments.
  • Do NOT operate machinery. Especially when titrating medications. It’s not just a balance and clarity issue. The anger that can accompany opiate withdrawal makes driving a serious hazard. I learned the hard way.
  • Be good to yourself. Be kind. Remember it took years to get here. Keep in contact with a medical care provider if you can’t be certain you or others are safe while withdrawing. Realize it takes time.

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I am not having a good time with this and it isn’t looking ladylike when I rage and roar…but I am determined to find peace without handfuls of medications that do nothing in the long run. While all of this is not so great of a time and at times quite embarrassing, if one person reads this with chronic pain or PTSD and keeps from getting themselves from being addicted to prescription pain and anxiety meds then I have done a good thing.

I am sharing this because I want to help others. There are other options to all the pills our doctors so freely hand out. I hope if you are reading this…it’s before you have a 20 year habit that you don’t even recognize it is a bad habit. I was just following doctors orders.